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August 28, 2010 — Gina Clowes (Views: 246)
A message from FAAN:
In recent years, many of you have taken part in various online surveys addressing issues important to the food allergy community.
For our newest online survey, we’ve partnered with Dr. Matt Greenhawt at the University of Michigan to better understand the relationship between food allergies and medications.
The survey is anonymous, has already been IRB approved, has 30 questions, and should only take a few minutes to complete.
We plan to share the results of this survey with the FDA, the federal body that regulates pharmaceutical products. We also plan to write an article on the survey results for a professional publication.
We invite you to take the survey by clicking on the following link:
http://www.surveymonkey.com/s/QYT2TDC
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August 26, 2010 — Gina Clowes (Views: 284)
Do any of you have an answer to the question below? I have dontated organic cleaning products to my sons school but am not aware of “green committees” Anyone have any advice for this parent?
Hi Gina,
Our school has a new principal who is outstanding and is very accommodating.
She is asking me to help her find safe cleaning supplies for the school.
Do you know of anyone who is on a green committee for their school, or who buys the cleaning supplies? I’d love a little guidance!
Thanks!
Polly
Please reply in the comments section.
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August 24, 2010 — Gina Clowes (Views: 395)
Kids With Food Allergies and members of its medical advisory board are conducting a research study to examine parental opinions about oral food immunotherapy, otherwise known as food allergen desensitization.
They are seeking parents of food-allergic children to complete a brief, anonymous questionnaire (10 minutes) which asks series of questions that inquire about your awareness of this treatment, any potential experiences you may have had with this, and your opinions about the importance of such a therapy. The goal of the study is to obtain the patient’s or their parent’s opinion about this therapy, given that this topic has received mainstream media attention, and may be offered by a provider in your area.
Please consider taking this survey: http://bit.ly/9EmE2j
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August 23, 2010 — Gina Clowes (Views: 201)
Washington FEAST's Food Allergy Conference has been rescheduled for Saturday September 25, 2010, at the Talaris Conference Center in Seattle. This first-ever Pacific Northwest Food Allergy Conference will focus on “Living Well with Food Allergies at all Ages and Stages.”
Linda Coss, author of "How To Manage Your Child's Life-Threatening Food Allergies," "What's to Eat? The Milk-Free, Egg-Free, Nut-Free Food Allergy Cookbook," and "What Else is to Eat? The Dairy-, Egg-, and Nut-Free Food Allergy Cookbook" will be giving the keynote address. Her topic is "What You Need to Know about Food Allergy Management." In addition to discussing some of the "basics" of food allergy management, such as recognizing and treating an allergic reaction and avoiding the dangers of cross-contamination, she'll also discuss how parents can handle all of these day-to-day issues in such a way that their child grows up "well-adjusted" in spite of having potentially fatal food allergies.
Dr. Jennifer Kim, board certified allergist and researcher from the Mount Sinai School of Medicine, Food Allergy Research Institute, will provide a research update.
For more information or to register to attend, visit the conference website at http://wafeast.org/Seattle_Conference.html.
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August 23, 2010 — Gina Clowes (Views: 268)
FAAN’s new Food Allergy Recipe Database is now open to all!
Free recipes for multiple food allergies including allergies to milk, wheat, egg, peanut, tree nuts, sesame, mustard and more.
The food allergy recipe database allows users to rate recipes and submit comments, as well as their own recipes!
This user-friendly section of the FAAN website categorizes recipes by course and is fully searchable by food allergen. Check it out today, and tell your friends and family!
This is a clever way to begin to train friends and family members on food allergy cooking and baking. It’s easily accessible and it’s FREE!
Try these: Cinna-minis
Cinna-minis Preheat oven to 375°. Lightly grease mini-muffin tins; set aside. In large bowl, combine flour, baking soda, baking powder, 3/4 tsp. cinnamon,… Full Recipe >
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August 20, 2010 — Gina Clowes (Views: 333)
I first read about this on Terri Mauro’s excellent blog at About.com. This time it was from Jennifer Anniston who used the “r” word. (”retard” or “retarded” Although many of us grew up with this word, it is considered offensive now as it is used to belittle those with cognitive disabilities.)
You can view the segment here on YouTube. Start at 1:56. (Thanks Terri!)
It appears that she made the comment innocently because she doesn’t even flinch after she says it. (Like those of us who know better.) But many are upset about the comment and are waiting for a response from her.
Sarah Schleider from the National Down Syndrome Society wrote a letter to Jennifer asking for her thoughts or comments.
Here’s what Ms. Schleider had to say:
When people with Down syndrome are inappropriately referenced, it sustains and perpetuates these low expectations and negative stereotypes and further impedes the acceptance of people with disabilities in schools, the workplace and the community. Negative and inaccurate public perceptions are the greatest barriers the National Down Syndrome Society faces in achieving acceptance and inclusion of people with Down syndrome.
I wrote about this last year, and learned an important lesson. If we want others to be more tolerant and accommodating of our kids issues, we should step up and be tolerant and accommodating to others.
Sometimes, we allergy parents get upset when people don’t “get” food allergies. How could they be so stupid as to cut the apple pie with the knife that cut the pecan pie? Or how could they have a bowl of peanuts out as our allergic toddler roams around the room?
In many cases, it’s the same as my cavalier use of the “r” word. I didn’t mean any harm but what I did was harmful. Even after I was reminded, I still slipped up. It took a little while, but it wasn’t because I didn’t care. It was because it was new to me and I had never really looked at the issue like my friend, who has an adorable niece with Down syndrome.
It helps to realize that we all have our problems and we’re all connected. Words do matter.
Facebook: Spread the word to end the word.
Your thoughts?
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August 18, 2010 — Gina Clowes (Views: 353)
ALLERGISTS OFFER RAGWEED SURVIVAL GUIDE Hay Fever Relief Possible with Simple Steps
ARLINGTON HEIGHTS, Ill., (Aug. 18, 2010) - August marks the start of misery for as many as one in five Americans who suffer from hay fever, also called seasonal allergic rhinitis. That's because ragweed, the main cause of hay fever, begins blooming around mid-August and in one day each plant can produce a million pollen grains that can travel for miles from its source.
"Ragweed can bring on sneezing, snuffy nose and watery eyes," says allergist James Sublett, MD, chair of the American College of Allergy, Asthma and Immunology's (ACAAI) public relations committee. "But there are lots of things people can do to find relief until the first freeze comes along."
Follow these survival tips from ACAAI:
Beat symptoms to the punch: Get a jump start on ragweed allergy symptoms by taking allergy medications in advance, beginning the first or second week in August.
Beware of other allergies that increase suffering: If you're allergic to dogs, cats or dust mites you may be even more susceptible to ragweed allergy. New research suggests these allergies "prime" the system, making hay fever suffering even worse. The solution? Get treated for allergies year-round, which will make hay fever easier to tolerate. Avoid peak exposure time: To reduce exposure during peak pollen levels, avoid scheduling outdoor activities between 5 a.m. and 10 a.m. when ragweed pollen counts are highest.
Sidestep yard work: Hay fever sufferers should avoid mowing the lawn and raking leaves, two activities that stir up pollen. If you must mow or rake, or are doing other outside activities, such as gardening, wear a National Institute for Occupational Safety and Health (NIOSH)-approved N95 respirator mask.
Grab some shade(s): Use style to your allergy advantage. Wear glasses or sunglasses that fit close to your face to keep pollen from irritating your eyes.
Steer clear of irritants: Reduce your exposure to air pollutants, such as cigarette smoke, insecticides, fertilizers, gasoline fumes, fresh paint and tar, which can worsen your symptoms.
Those who suspect they have hay fever or other allergies should get tested by an allergist - a doctor who is expert in diagnosing and treating allergies and asthma.
To learn more about allergies and asthma, take a free relief self-test or find an allergist near you visit www.AllergyAndAsthmaRelief.org. About ACAAI
The ACAAI is a professional medical organization headquartered in Arlington Heights, Ill., that promotes excellence in the practice of the subspecialty of allergy and immunology. The College, comprising more than 5,000 allergists-immunologists and related health care professionals, fosters a culture of collaboration and congeniality in which its members work together and with others toward the common goals of patient care, education, advocacy and research.
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August 17, 2010 — Gina Clowes (Views: 325)
Child With Food Allergy Does His Part to Find a Cure
FAIRFAX, Va. (August 12, 2010) - Leandro de Armas is not your typical 7-year-old. While he shares the same interests as most boys - playing sports, collecting trains, and learning about insects - it's his intense focus on helping find a cure for food allergies that makes Leandro stand out.
FAAN's (The Food Allergy & Anaphylaxis Network) Walk for Food Allergy: Moving Toward a Cure is being held in more than 50 cities across the nation this year to raise awareness and funds for food allergy research and education programs. As FAAN's Heart of FAAN Child Ambassador, Leandro is playing a valuable role in increasing awareness about food allergy, a potentially fatal medical condition that affects an estimated 12 million Americans, including 3 million children like Leandro.
Leandro, of Miami, is allergic to peanuts, tree nuts, and peas. Peanut and tree nut allergy are among the most dangerous food allergies, and a recent study showed that the incidence of peanut and tree nut allergy among children tripled between 1997 and 2008[1].
"Not many children have this opportunity, and I'm really excited that I am the one FAAN chose to create awareness for food allergies. It is important to raise awareness, and I want all the people to learn about food allergies, so that all the children can be safe," Leandro said.
Leandro has already appeared in a national public service announcement for FAAN's Walk for Food Allergy, and he hopes that people with and without food allergies will participate and support this cause. The national Walks kick off Aug. 15 in Denver and Seattle, with Walks scheduled nearly every weekend of the fall in more than 50 cities across the country.
"Even though he is just 7 years old, Leandro is very driven, and most importantly, very hopeful that scientists will find a cure for food allergy," said FAAN CEO Julia Bradsher. "It is inspiring to see a child who not only wants a cure, but is doing something about it, and that's why Leandro is doing such a great job as FAAN's first Heart of FAAN Child Ambassador."
Leandro will be appearing at the Walk for Food Allergy in Miami on Nov. 6. Walk events are family-friendly and provide a fun way to spend a weekend day while doing something that benefits the food allergy community. For more information, to register, or to make a donation, please visit www.foodallergywalk.org.
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[1] US prevalence of self-reported peanut, tree nut, and sesame allergy: 11-year follow-up. Scott H. Sicherer, Anne Muñoz-Furlong, James H. Godbold, Hugh A. Sampson, The Journal of Allergy and Clinical Immunology - 12 May 2010 (10.1016/j.jaci.2010.03.029)
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August 16, 2010 — Gina Clowes (Views: 658)
"...I realize that the more I understand of other people's difficulties, the less funny they are." –Joel Stein
Many of you will recall that Joel Stein wrote a piece for the LA Times titled "Nut Allergies-A Yuppie Invention" last year questioning the increases in food allergies and attributing this to parents who need to feel special! The mixture of humor sprinkled with a few out of context facts and ridiculous conclusions outraged many of us who are raising food allergic children.
Anaphylaxis in a child is about as funny as a car accident, and I've yet to meet a parent who had a child diagnosed so they could feel special. Sadly now, the peanut-free tables are turned and Joel's young son Laszlo was diagnosed with nut allergies. Joel Stein wrote about this in the August 9, 2010 issue of Time Magazine.
The blogs and message boards are ablaze over this, some include mean-spirited blog posts about karma while others seem frustrated that Joel Stein still doesn't "get it" because he wrote that he would not be "banning nuts" from their home nor would they send him to a nut-free school.
Read the entire article here.
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August 11, 2010 — Gina Clowes (Views: 520)

Many emails and a few phone calls about Joel Stein’s piece in the August 9, 2010 issue of Time Magazine.
For those of you who haven’t heard, Joel Stein, infamous to the allergy world because of a piece he wrote for the LA Times last year, wrote a new article about his son’s recent allergic reaction and diagnosis of nut and seed allergies.
First, let me say that I am really sad to see all of the nasty blogs and comments on message boards about karma. Really folks? This is a little boy we’re talking about.
While I agree the original article did us no favors and I wrote about that here, I’ve heard from a couple of folks that he “he had good intentions with this article” and that “he is remorseful”
So, I’ve asked him to answer a few questions for us. Maybe I can recruit him into an advocate for our cause….
I’ll keep you posted!
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